Thursday, September 20, 2012

The Resuscitation

....and the SPELLING thereof! What a word! Have I EVER had to spell that word before? I don't think so. If it's spelled wrong, I apologize.

What was stopping me from blogging for this long!?! It's embarrassing how long it has been. For the past 5 months, I've been so wrapped up in the MS induced pharmaceutical shit-storm, that at ANY given point, I've been too distracted to type in the web address to even get me to this page. That, and the fact that "sleeping" started becoming the best option over just about everything else. Stupid, right!?

Today, there is an equally serious obstacle...the Fat Orange Cat. I actually can't see what I'm typing because he is blocking the screen with a frantic "stompade" of my abdominal region. He is so big. I'll have to spell-check this, for sure!

In all seriousness...I'm back from my somewhat involuntary "blog hiatus" because...I now feel pretty good! I'm 30 days into my Gilenya (fingolimod) treatment - (and as of yesterday, I'm 33 years into my LIFE.) and it feels pretty amazing to be taking a PILL for Multiple Sclerosis, available for the first time in history. I sure don't miss the incessant stabbing with needles and the resulting super-sexy welts and bruises. Seemed especially stupid to keep it up when apparently the disease kept progressing anyway. Looking back it's been kind of a rough road, since...well...I don't even know since when. But a rough road nonetheless. I wouldn't go so far as to say I'm worry-free, however, the anxiety over the initial risks seems to be fading. As are what we can only assume were random wacky side-effects, like having trouble breathing...headache and back-ache. In fact, I did read that a possible side-effect of Gilenya is "an MS relapse". (And that, my friends, would explain why I felt like my rib cage was being crushed for the past 3 weeks.)  I spent time in the ER with doctors trying to determine if what I felt was the drug OR the disease. Guess it was both. Coincidentally, just as I start this new treatment, another oral medication for MS gets approved! When it rains, it pours, I guess? I know it's not a CURE yet...but to any and all who might be considering Gilenya for their MS....I feel really good about finally arriving at this decision to jump in and join the 30,000 trailblazing patients worldwide.

Enough about the serious stuff. Join me tomorrow, when I will use this blog to "rip Sears a new one". But it will have to be AFTER I go to my work-out in wet clothes since, while we GOT the new dryer today (MIRACULOUS) after 7 weeks, the guy who has to BY LAW come and connect it....never came back after the delivery. Oh, and there is more....TOMORROW!

Today was strange. I feel like the only thing at which I truly succeeded was:

1) Eating an entire box of chocolates.

I did prepare Mahi Mahi with balsamic asparagus for dinner...but due to lack of seasoning....see above.

PS. I guess I technically succeeded in re-opening the crypt that was/is "this blog".


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