Ugh, I hate when my blog ideas all cluster together. I literally typed that first sentence last night, before my computer battery died. I was going to write an imaginary tale about this landscaper I drove by, who looked JUST like Paul Ryan. Almost to the point where I thought it was a publicity stunt by Republicans. But that was yesterday, so I've now forgotten what my awesome story was going to be.
It's been a busy week. A lot of my time was taken up by trying to clean ricotta out of a strainer. On Wednesday, or...maybe it was Thursday? It was Thursday. On Thursday I branched out and tried Whole Food's Gluten-Free Ravioli. SUCH a good idea, and sooo...not a great execution. The raviolis fell apart after 1.3 seconds in the boiling water. And to add insult to injury they were not very tasty. Neither was the vodka sauce. So, in short, I blame the lack of flavor of my main dish for my over-indulging on the garlic bread. Mmmm, garlic bread.
Do you know what I think of whipped cream in a can? I think it's a scam. The cans feel almost the same when full, as they do when empty. And my whipped cream cans seem to ALWAYS be empty. Terence says it's because I eat so much of it, but I don't buy it. More often than not, I sit down to enjoy my pancakes with Nutella and whipped cream, and all I get is a blast of noisy air. Stupid. At that point the Nutella is already ON the pancake too, so there is really no turning back. I've taken to OVER stocking whipped cream, so that that situation doesn't happen so often.
I took the pups to the woods today, and they had so much fun. I like how Sara is waterproof. She flew headfirst into the creek, came out BLACK with grimey gunk, and was clean by the time the walk was over. I still gave her a wipe down with doggie wipes when we got home. I can't remember where we got these wipes but they seriously smell like men's cologne. So now Sara is exhausted, snoozing on the couch, smelling like what I would imagine Will Ferrell's character in Anchorman would smell like.
I am not all that inspired to write right now. I am lacking in sleep recently. How tired am I? Yesterday evening I was apparently so tired that when I thought I was texting Terence "you should get breathe right strips and a humidifier for your snoring"....I accidentally sent that text to a student's MOM instead. Of all the texts to send to the wrong person...sigh. Guess it could have been worse, but it sure could have been better too.
The MS drug BG-12 got FDA approval on Wednesday! I'm excited for all the people who have been waiting for this day. I still don't quite understand why Gilenya never got the hype that BG-12 seems to get. The general MS community seems full of people who either "didn't want to try something so new" (which makes no sense since BG-12 is NEWER!?) or was "afraid of all the side effects". But the side effects of the "old" drugs, are just as dangerous if not MORE. So that doesn't really make sense either. The reasons I ultimately opted for Gilenya are the following:
1) Side effects are POSSIBLE, but not GUARANTEED. MS progression is very likely, and possibly guaranteed.
2) Gilenya is almost twice as effective as the drugs that are currently on the market, and certainly not MORE dangerous.
3) The possible side effects are mostly treatable and for the most part reversible when detected early. And unless you are the kind of person who goes along with having MS without paying attention to what's happening to you... I'm fairly certain you'd notice changes in vision, for instance.
So, why was the general population of MS patients "wait for BG-12"? Is the average patient simply deferring to the neurologists of the world, who I suspect often "go with what they know", OR are the neurologists really in the pockets of pharmaceuticals? Which would simply mean that Biogen has more money than Novartis...?
I basically figure that in spite of how money driven these big drug companies are, they are not going to WANT to kill people if they can avoid it. Drugs will become better with time. And less dangerous, in general, with newer knowledge. I want to improve quality of life. I do feel like some patients almost derive their "purpose" from having MS. I do not want to be one of them. No matter what happens, it's information for the future. With a chronic progressive disease, we have to have faith in that patients aren't the only ones who want a cure.
OK, time to get ready for tonight - Brenda, Jeremy and Sean are visiting from California. Brenda has a show tomorrow, as part of the Burlesque Festival this weekend! Should be a lot of fun! They had a rough time with United Airlines (who doesn't these days...) losing their bags. That airline is the worst. Seriously. They promised to deliver the lost bags between 1AM and 6AM, which of course didn't happen. Jeremy was able to get a rental car and drive to East Boston to some random holding facility and get their bags. Screw you, United Airlines! I hope you find this blog and get your feelings hurt!